Just Diagnosed

VIDEOS

We are excited to bring new and updated information to share through our Bladder Cancer Video Library. For this video series, we are pleased to work...

OncTalk 2021, a live-online, patient education event featured top oncologists discussing Early Stage and Advanced Non-Small Cell Lung Cancer. This...

The 2021 Targeted Therapies Patient Forum, presented live-online, featured top oncologists in their field discussing the most current and emerging...

Drs. H. Jack West, Joan Schiller, and Isabel Preeshagul gathered this past year (virtually) to review information presented at ASCO and ESMO 2021...

Dr. Rafeh Naqash, one of the participants in the GRACE Patient Education Ambassador Program, shares a fantastic video series on understanding clinical...

ARTICLES

Registration is now open! Join us for the annual 2024 Blood Cancers OncTalk! Register Now! This live, virtual, interactive patient education event...

Este 20 de julio no te puedes perder nuestro Foro anual de pacientes de terapias dirigidas de cáncer pulmón de GRACE en ESPAÑOL. Es un evento...

Este 20 de julio no te puedes perder nuestro Foro anual de pacientes de terapias dirigidas de cáncer pulmón de GRACE en ESPAÑOL. Es un evento...

Este 20 de julio no te puedes perder nuestro Foro anual de pacientes de terapias dirigidas de cáncer pulmón de GRACE en ESPAÑOL. Es un evento...

COMMUNITY FORUM

Hello, my father has stage 4 NSCLC (exon 21 L858R mutation) with metastasis to his brain. His first treatment was with Tagrisso, which worked...

Hello! Our Blood Cancers OncTalk was a success. Here it is in its entirety. If you have questions please don't hesitate to ask. Take care, Janine

I chose this forum as I thought you would be persons most informative that might be able to help me decide. Thank you. Healthy wellness check/physical...

Hello everyone, I'm seeking advice as my wife (51) and I navigate a tough treatment decision in her cancer journey. We are incredibly grateful to be...

Hi, I am new to this forum. I should be very grateful if you could help me interpret or give me your views on the result of my lung nodule scans. I...

Recent Comments

Z, Don't apologize for…
Comment By JanineT GRACE … on Jan 29, 2025 10:22 am
Rukenk,

Please let us know…
Comment By JanineT GRACE … on Jan 29, 2025 10:22 am
Rukenk,

Please let us know…
Comment By JanineT GRACE … on Jan 29, 2025 10:22 am
Thank you Janine
Comment By JanineT GRACE … on Jan 29, 2025 10:22 am

Be Your Own Best Advocate

Hi Grace Readers,  I want to share a newly published post written by one of our board members, Nancy Sladicka.  It covers most of the most important basic tips and tricks needed to become your own advocate in cancer care. 

 

Maybe the most important reason to have this info is because medical oncologists, even those who specialize, can not keep up with fast moving changes in every facet of the care and treatment of their patients. 

 

I joined GRACE as a caregiver for my husband who had a Pancoast tumor, NSCLC stage III in 2009. He had curative chemo/rads then it was believed he had a recurrence in the spine/oligometastasis that was radiated. He's 10 years out from treatment.

You Have Been Diagnosed - What Next?

Article

 

A diagnosis of cancer can be devastating - suddenly time stands still while anxiety and fear take hold.  


The important news is that you or your caregiver can be your best advocate and ally in your treatment journey.  If you want to be an active participant in your care, here are some tips to consider as you begin to process your situation:

 

The Importance of Testing and Early Diagnosis

Video

For this 2022 Program: Testing and Early Diagnosis, Drs. Devika Das, Medical Oncologist, Hematologist, UAB Medicine, Clinical Assistant Professor, University of Alabama Birmingham; Dr. Rana McKay, Medical Oncologist, Associate Professor of Medicine, UC San Diego; and Dr. Medhavi Gupta, Hematologist-Oncologist, Roswell Park Comprehensive Cancer Center, Assistant Professor of Medicine, Brown University, present the importance about Testing and Early Diagnosis in Cancer.

 

6 mm ground glass nodule

Hello all! I am new to this forum, and although I have not been diagnosed with cancer, I did discover on a relatively recent CT scan that I have a 6mm lingular ground glass nodule. The CT scan (which I had done in December of 2021) was of my abdomen and pelvis to check for diverticulitis (which was negative), however, the ground glass nodule was incidentally found. I had had a prior CT scan of my abdomen and pelvis for suspected kidney stones almost two years prior, and no mention whatsoever was made of the ground glass nodule.

Bladder Cancer Video Library - Microbiomes and Genomics: The Effect on Immunotherapy

Video

We are excited to bring new and updated information to share through our Bladder Cancer Video Library.


For this video series, we are pleased to work with Dr. Shilpa Gupta, Director of the Genitourinary Medical Oncology at TCI and Co-Leader of the Genitourinary Oncology Program at Cleveland Clinic, Dr. Petros Grivas, Oncologist with the Seattle Cancer Care Alliance, UW Medicine and Fred Hutchinson Cancer Research Center, and Dr. Jason Brown, Medical Oncologist at University Hospitals Cleveland Medical Center.

Bladder Cancer Video Library - Tumor Infiltrating Lymphocytes and Tumor Associated Macrophages

Video

We are excited to bring new and updated information to share through our Bladder Cancer Video Library.


For this video series, we are pleased to work with Dr. Shilpa Gupta, Director of the Genitourinary Medical Oncology at TCI and Co-Leader of the Genitourinary Oncology Program at Cleveland Clinic, Dr. Petros Grivas, Oncologist with the Seattle Cancer Care Alliance, UW Medicine and Fred Hutchinson Cancer Research Center, and Dr. Jason Brown, Medical Oncologist at University Hospitals Cleveland Medical Center.

Bladder Cancer Video Library - Tumor Mutation Burden and Neoantigens

Video

We are excited to bring new and updated information to share through our Bladder Cancer Video Library.


For this video series, we are pleased to work with Dr. Shilpa Gupta, Director of the Genitourinary Medical Oncology at TCI and Co-Leader of the Genitourinary Oncology Program at Cleveland Clinic, Dr. Petros Grivas, Oncologist with the Seattle Cancer Care Alliance, UW Medicine and Fred Hutchinson Cancer Research Center, and Dr. Jason Brown, Medical Oncologist at University Hospitals Cleveland Medical Center.

Bladder Cancer Video Library - PD-L1 in Metastatic Bladder Cancer

Video

We are excited to bring new and updated information to share through our Bladder Cancer Video Library.


For this video series, we are pleased to work with Dr. Shilpa Gupta, Director of the Genitourinary Medical Oncology at TCI and Co-Leader of the Genitourinary Oncology Program at Cleveland Clinic, Dr. Petros Grivas, Oncologist with the Seattle Cancer Care Alliance, UW Medicine and Fred Hutchinson Cancer Research Center, and Dr. Jason Brown, Medical Oncologist at University Hospitals Cleveland Medical Center.

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